We've had enough of this drain (to our defense, it's been almost 3 weeks!) It's been possibly infected, and now it seems to be coming out. We've been on hospital notice since Thursday, waiting for more signs/symptoms of infection. Now it seems to be coming out, or maybe it's just that the swelling has gone down so much we can see (what's supposed to be) the internal part of the drain. If it's infected, it's a trip to Cincy, pull the drain and probably at least some IV antibiotics.
*dramatic sigh*
We'll see what state we sleep in the next few nights... I'd be so bored if I had a healthy kid. (I'm joking).
Saturday, September 10, 2011
Thursday, September 8, 2011
Happy Birthday Micah!
We celebrated Micah's birthday on Saturday... I'm a little (or a lot) slow on getting the pictures up, but they'll be here someday!
We're actually getting the internet this week, so hopefully that'll make it easier! (We've not had the internet in the 4 years we've been married!)
We're actually getting the internet this week, so hopefully that'll make it easier! (We've not had the internet in the 4 years we've been married!)
Tuesday, August 30, 2011
Home!
We got home yesterday about 4pm.
We go back Thursday, LOL. So goes the life. He's going to the OR to get his stitches out, get his drain replaced and get an airway scope.
We go back Thursday, LOL. So goes the life. He's going to the OR to get his stitches out, get his drain replaced and get an airway scope.
Sunday, August 28, 2011
Twiddling our thumbs...
We are earnestly, sincerely hoping that at 6:30 tomorrow morning they are going to say, "see you next week! (We already know we have to come back Friday or Tuesday or something).
We've been trying to kill time... and kill time... and kill time. Spent some time in the playroom.
Spent some time in the wagon.
Spent some time roaming the hall floor.
Spent some time throwing balls.
We're all pretty ready to get out of here.
I'll share a little story I put on FB. Never got the picture, but you better believe it was super cute.
There's a probably 5 year old girl on the floor with her stuffed dog. The dog apparently can't come into her room (in her mind) so he's sitting outside. So, the nurse took two of those ugly patient tubs and put them together, cut out an opening and made a dog house! She covered it with the comics from the newspaper. The little girl was SOOO happy!
The mom was just tickled as well. It was the highlight of our day. The girl had a trach and asked if Micah had one too. She was probably here for a capping trial (put a cap on the trach and see how they do, a step before taking the trach out). Boy... she'd talk your ear off. Her voice was very raspy and breathy, but I got most of what she was saying. She literally would talk until she couldn't talk and then gasp for air. Apparently not too used to being capped!
Anyways... if you don't hear from us online after 10am, we're probably on our way home.
We've been trying to kill time... and kill time... and kill time. Spent some time in the playroom.
Spent some time in the wagon.Spent some time roaming the hall floor.
Spent some time throwing balls.
We're all pretty ready to get out of here.
I'll share a little story I put on FB. Never got the picture, but you better believe it was super cute.
There's a probably 5 year old girl on the floor with her stuffed dog. The dog apparently can't come into her room (in her mind) so he's sitting outside. So, the nurse took two of those ugly patient tubs and put them together, cut out an opening and made a dog house! She covered it with the comics from the newspaper. The little girl was SOOO happy!
The mom was just tickled as well. It was the highlight of our day. The girl had a trach and asked if Micah had one too. She was probably here for a capping trial (put a cap on the trach and see how they do, a step before taking the trach out). Boy... she'd talk your ear off. Her voice was very raspy and breathy, but I got most of what she was saying. She literally would talk until she couldn't talk and then gasp for air. Apparently not too used to being capped!
Anyways... if you don't hear from us online after 10am, we're probably on our way home.
Saturday, August 27, 2011
Friday, August 26, 2011
Try me...
So, on rounds this morning they confirmed we're stuck here til Monday, and even after that the question was whether we can go home or stay local. Seriously, if we're stuck here I'm really thinking about going to the zoo! Of course, Micah's super swollen slightly black and blue face might get some looks (I didn't remember his big and floppy hat), that's nothing out of the ordinary.
Seriously, it's like watching a faucet drip. And just as irritating.
The drain is barely even working, so there's a hole in his neck and it's dripping down his clothes. They're bringing in Interventional Radiology to see if they have any ideas. To be fair, Dr. Elluru told us "2-10 days" to expect to be down here. 2-10? Really?!
All this and we have to be back probably the 6th to get the stitches out. I'm guessing not the 5th, since it's Labor Day.
We're still waiting on some of his bloodwork to see if he'll get that 4-5 hour infusion before we leave. I can't imagine we'll get out of here without it, he doesn't have a good track record in IGG land.
The highlight of my evening was chatting on facebook with a handful of moms that have kids with LM's. We decided we could do our own reality tv show, "The real housewives" if you will. :) We'll show them drama! Or, instead of "The Office" We could have "the Doctors Office". The spinoff could be "The Therapy Office". :)
Seriously, it's like watching a faucet drip. And just as irritating.
The drain is barely even working, so there's a hole in his neck and it's dripping down his clothes. They're bringing in Interventional Radiology to see if they have any ideas. To be fair, Dr. Elluru told us "2-10 days" to expect to be down here. 2-10? Really?!
All this and we have to be back probably the 6th to get the stitches out. I'm guessing not the 5th, since it's Labor Day.
We're still waiting on some of his bloodwork to see if he'll get that 4-5 hour infusion before we leave. I can't imagine we'll get out of here without it, he doesn't have a good track record in IGG land.
The highlight of my evening was chatting on facebook with a handful of moms that have kids with LM's. We decided we could do our own reality tv show, "The real housewives" if you will. :) We'll show them drama! Or, instead of "The Office" We could have "the Doctors Office". The spinoff could be "The Therapy Office". :)
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