So, this new medicine came with a little stronger warning from the Hematologist/Oncologist than we'd previously heard. This medicine is her 'baby' so to speak, she's overseeing the clinical study and the kids not on the study as well. We're back to being "on high alert" when it comes to sickness and germs. The first 8 months of his life were that way, and to a lesser extent, this last winter. But, back to high alert. We're thankful for the fact it's spring and there's less going around now than a few months ago. But, we were looking forward to getting out and doing group things... which isn't going to happen now... For at least a couple more months.
The docs want to know anytime he gets ANY type of illness. Luckily, our Ped knows us well and does not hesitate to see us anytime something is up. He's a great partner to the Cincinnati crew.
Therefore, we will be cutting our outings at church down at least a little and not taking him to the store as much as possible. Luckily the majority of youth stuff is outside in the summer, less likelihood of getting exposed to germs.
Therefore, we will be cutting our outings at church down at least a little and not taking him to the store as much as possible. Luckily the majority of youth stuff is outside in the summer, less likelihood of getting exposed to germs.
But... if you're sick, your kids are sick or anything like that, please keep your distance from Micah.
Anyways, enough depressing stuff, here's the cute kid. He's such a trooper! We've been to Cincinnati 3 times in 8 days, and he really hangs in there for us. It would be nice if we lived closer, but at least we're not any farther away!
Praying the rapamycin is the answer to the drainage, and that Micah won't pick up "bugs" from anyone. Thankful he doesn't mind the traveling - he thinks everyone goes for long rides every few days! Praying for all of you. Lovingly, Miriam
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