Wednesday, September 30, 2009
We just wanted to say thanks to everyone (big and small) who have sent us cards over the last few weeks. Here's our thank yous from today...
Wes and Amy
Ed, Melissa, Brooke, Chase, Sheldon and Brelle
Grandma and Grandpa Pritchard
Alisha, Pam and Jerry
Don and Sharon
Dave, Jude and Isaiah
Ray, Pam, Holly, Amber and Blake
Terry and Ginny
Lynn and Betty (thanks for the picture, that was great!)
Ken and Judy
Ronald and Irene
Mike, Pam and Emilee
and.. Linda's class at Stepping Stones
You all made our day. :)
Tuesday, September 29, 2009
Monday, September 28, 2009
Saturday, September 26, 2009
Things have been pretty slow around here. Nothing exciting happening. Still planning on surgery on the 2nd, and still no word on the ENT/pulmonary scope. They were supposed to have a date for us on Thursday... not that I'm impatient or anything.
We ventured for an afternoon out on the town yesterday... It's the first time I've been in a store in about 8 weeks. It was only Walmart, but you better believe I didn't care. It was nice to get out and be reminded... it's fall... not summer anymore. The leaves probably change a lot later here than home, I guess we'll see.
They're going to make me a germ-o-phobe yet... They've taken all the magazines and toys out of the waiting rooms, and have all but locked down the inpatient/ICU areas. Now, you have to go to the front desk, give them the name of who you are visiting... they call and confirm, they take your name down, give you a bracelet, unlock the elevator and designate which floor it can go to. It's a little crazy, really.
Thursday, September 24, 2009
Micah had another okay day... they decided to give him blood because his red blood cells count remained low for a few days. They'd wait it out except that he's going into surgery next week.
Our "pod" (room) of kids got pretty empty today, half the kids moved out! The little neighbor girl had surgery this morning so I'm sure if their family could use some prayer.
We're just so proud of how Micah is doing, and we love him so much. We also love the staff because they love our baby too. The physical therapist just gets the biggest kick out of Micah because he has a LOT of personality. He's pretty fun.
Wednesday, September 23, 2009
Micah had a good day today. He got his NJ (feeding tube) put back in. Bugged him a lot at first, but overall not nearly as much as last time he took a field trip to radiology. Micah was super awake for a lot of the day today. He was pretty content. It was really nice that he was stable because we were able to come back to the house and rest. It's amazing how sitting in the hospital can be exhausting, but it is. Tomorrow will hopefully be good as well.
The big news is that his G-J tube placement (his feeding tube in his stomach) will be placed on October 2nd. The ENT doctors want to do a scope to check out his airway and lungs. Both require general anesthesia which is a bummer. That procedure isn't planned, but hopefully it'll be the beginning of next week. He'll keep the breathing tube at least through the lung scope.
We're also enjoying fancy peanut butter... I never thought there was much of a difference, but this choosy mom chooses peter pan. :) (Travis just shook his head and called me a nerd. I thought it was funny).
Have a good night.
Tuesday, September 22, 2009
The plan is still to put a GJ tube (a feeding tube into his stomach and then further into his intestines) at the beginning of next week, maybe before. The vent tube will likely stay in until after the surgery- but that's just a guess.
Monday, September 21, 2009
Sunday, September 20, 2009
Highs for today.
1) Micah got moved to medical rounds, from surgical rounds. This means the doctors think he's recovered from his surgery! Yay!
2) Micah got his first big boy bath today. I laugh just thinking about it. He wasn't too fond of the water, although he liked the shampoo getting rubbed in his hair. Micah, in true form, pooped and peed in his first bath. It was pretty amusing, but only because the nurse was doing the dirty work. (He poops at the most inopportune times... like 5 minutes after changing him). Too much info? Sorry.
3) We had visitors this weekend! We hope to get pictures up soon. It was the lsat visitors Micah will get for awhile, so hopefully he enjoyed them.
4) We had a better day today than we had yesterday. Less drops in heart rate and oxygen.
1) We had a terrible, horrible, no good very bad night last night. He dropped about 11 times in less than 4 hours. Worried mom and dad so much we went in at 6 this morning. Long day.
2) Sort of a low, but not really. Micah got moved back to high flow oxygen. They figured since he's been having so many problems, it was worth trying high flow. It's a step backwards from the low flow in a way, but it's seeming to help out. He's not dropping nearly as frequently with the high flow. Lets hope it stays that way... Tonight will likely tell.
Can't wait to get pictures up... We have some fun ones- it's been a busy weekend. Micah has a big test tomorrow to try to narrow down why he's dropping like he is. They'll put a little camera down his throat to see what he's doing with his saliva- whether it's ending up in his lungs or if he's swallowing it. Please pray he cooperates for the test because mom and dad need some answers! This test may not give us the correct answer for what's going on, but it'll help narrow down what it isn't at least. His test is around 11.
Just wanted to say thanks for all the comments. If you frequently read, you should comment. Just click where it says comments on the bottom of the post... and write your comment... choose "anonymous" (but make sure you sign your name) and hit post/submit. We'd love to hear from all of you.
Oh, and I almost forgot... We got internet in our room at the house! We got an ethernet cord, and it works! Yahoo!
Friday, September 18, 2009
The GOOD news is that Micah's FEES test (the one to see where his saliva is going) has been moved up to this Monday the 21st. It was supposed to be the 28th. This may not provide answers, but it will help narrow down the potential problem he's having with his heart rate and oxygenation. We pray they find that nothing is going into his lungs that shouldn't be.
We just wanted to say how much we appreciate all the prayers. We know it's the only way we're getting by... especially since it's been a long week. We can't wait to come home and see you all! Oh, one more thing... Since it looks like we'll be here longer than anticipated, please pray we have wisdom to sort out all that goes along with that.
Thursday, September 17, 2009
The speech therapist is also questioning Micah's ability to suck on his pacifier. He makes lots of "munching" motions, and what seems to be swallowing motions, but he can't seem to get his tongue where it needs to be to suck. There's a chance there's some of the lymphatic tissue under his tongue. It also could be that he's just not got the skill down quite yet. We hope this is the case.
It's been a really long week. There's a lot of other things going on with insurance, and someone went through our mail yesterday (who does that?!). We're afraid something is missing... whether it be a bill, or something that may have account information. It's just been a really, really long week. We're looking forward to company this weekend though!
Please pray that Micah starts to sort himself out on his own since his test is a week and a half away.
Tuesday, September 15, 2009
On a good note, Micah got a big boy bed today. He's out of his little own bed, and now has his own crib. We'll try to get pictures up soon. (Now that grandma is home, we don't have our resident photo poster).
Monday, September 14, 2009
We finally got back the pathology report we've been waiting on for almost a week. It showed that Micah's condition is indeed a lymphatic malformation, and not a cervical teratoma. This is what they thought all along, but it's good to be sure.
Sunday, September 13, 2009
I read this recently, and it struck me. Maybe you'll appreciate it too. It's part of a devotion by Charles Spurgeon...
"My grace is sufficient for thee." 2Corinthians 12:9
If none of God's saints were poor and tried, we should not know half so well the consolations of divine grace...
God's grace is illustrated and magnified in the poverty and trials of believers. Saints bear up under every discouragement, believing that all things work together for their good, and that out of apparent evils a real blessing shall ultimately spring—that their God will either work a deliverance for them speedily, or most assuredly support them in the trouble, as long as He is pleased to keep them in it. This patience of the saints proves the power of divine grace...
The master-works of God are those men who stand in the midst of difficulties, stedfast, unmoveable,—"Calm mid the bewildering cry,Confident of victory."He who would glorify his God must set his account upon meeting with many trials. No man can be illustrious before the Lord unless his conflicts be many. If then, yours be a much-tried path, rejoice in it, because you will the better show forth the all-sufficient grace of God. As for His failing you, never dream of it—hate the thought. The God who has been sufficient until now, should be trusted to the end.
Have a great night. :)
He's definitely making baby steps forward when it comes to being able to suck and swallow. He's at least interested in the idea, which is more than a few days ago.
Unfortunately, everyone is going home today. It's going to be strange, but we've been glad to have as many visitors as we have.
Continue to pray for Micah, and that I (Brittany) will feel better. My allergies came roaring back, and I'm not able to take the medicine I usually take. Lots of coughing + big ncision= pretty miserable.
Friday, September 11, 2009
Thursday, September 10, 2009
(and yes, for those who asked, he is getting longer. He's about 19 3/4" long now, up from 19". He's growing fast! He has lost about 5-6 oz, which is to be expected. He's long and spindley!)
Wednesday, September 9, 2009
Tuesday, September 8, 2009
Monday, September 7, 2009
EDIT: Tomorrow they are planning on extubating Micah (taking out his breathing tube). The ear nose and throat doctors are confident that now is good time, but there's always a chance they'll have to put it back in. That would be a bummer, but it shouldn't be a big deal if it has to go back in. It's a big, exciting, unnerving thing because they're going to look at his airway and we hope they don't see any new lymphatic problems. Please pray!
Sunday, September 6, 2009
Saturday, September 5, 2009
It's been a busy day in his little life- all good things! Pictures to come!
Friday, September 4, 2009
We got a call from a pastor in Cincinnati on our Ronald McDonald house phone. He knows someone, who knows someone we know. He came to the house and looked for us, but we were nowhere to be found. He was from the area, and just wanted to see how we are doing. It’s amazing how kind and generous people can be.
Thursday, September 3, 2009
Thanks for praying!
- Mom and Dad
Wednesday, September 2, 2009
He’s a sweet little boy. He’s pretty sedated most of the time, but you can still tell how he’s feeling by the little faces he makes. He’s quite ticklish (which makes mom very happy) and he loves to stretch out his long legs. As long as no one is poking at him, he just lays there pretty content as long as he doesn’t get the hiccups.
Travis and I got some sleep last night thankfully. We both are doing well. The nurses say I’m coming along pretty well considering the big incision I’ve been dealt.
We appreciate your prayers and pretty much beg for them, especially in the next day or two. Have a great day. We’ll get updates posted as soon as we can tomorrow.
Tuesday, September 1, 2009
Micah weighed 5 lb 13 oz ,19 inches. Micah is doing great! The Doctor gave him a A+. They are talking about when to do his surgery. We'll keep you posted. They are still concerned about his airway. Brittany is doing wonderful for someone who had major surgery less than 24 hours ago. She is back at Childrens Hospital. I'll let her tell you the story about getting there. She is much better at it than me. Please continue praying for the Hartman family. They have a long road ahead of them. But Micah is here and wonderful. But Grandma's are bias.
I (Brittany) am doing alright. Kind of feels like someone cut open my innards! They had to bring me back to University Hospital last night, because there was no room for me in the inn. They weren't expecting me till Wednesday. One of the doctors commented that he appreciated that it wasn't 2 in the morning (He always joked Micah would come at 2 am on Saturday). They're supposed to get me back to Childrens around 10 this morning.
Well, I'm sure we'll post more later... Hopefully some pictures, too!
The will acess Micah in the next few days, to decide when they will do his surgery.
Travis just called and said Micah is doing great, when he went in to see him, he perk up and opened his eyes when he heard his voice.
Thank you for all the prayers, please continue to pray for Micah's surgery and Brittany healing.