Friday, February 26, 2010

Hi-ho, hi-ho...

it's off to Ohio we go!

We're leaving Sunday, hopefully coming back Friday. Honestly, I'm dreading this. A lot. Ugh.

I don't know how some families do it!

Monday, February 15, 2010

Catching up...

Here's the tooth that came out of the middle of nowhere! I still can't believe it... He's only 5 1/2 months old, and really is more like 4 1/2 months old since he was premature! The picture of Micah and Travis has to be one of my very favorites ever.

Here's some mommy wisdom I've learned. When I was pregnant, my hair grew and grew. It was thick and wonderful. Then... all out once, it made a mass exodus. It was like someone ran into a crowded theater and yelled, "FIRE!"... out it fell... in clumps, in heaps... Darn.
Another thing... Diaper changing stations in restaurants are NOT a given. We obviously spend a fair bit of time driving to and from Cincy with Micah. There's a great town about halfway to Cincy... We've stopped at 4 major chain restaurants... Only one had a changing table. People... really... do you want me to be changing his dirty diaper in the middle of your restaurant? You're not giving me much of a choice.

Micah is starting to take a spoon, which is super exciting. He really can't have anything more than a half drop of milk, but he likes it! This was a totally unexpected development, spurred on by the tooth I think. If by some miracle he passes his tests in March, we might be talking eating by mouth! (By some miracle being the important part). Anyways, I've been in touch with the miracle Man, anything can happen!

Anybody have any experience with the Indiana state parks? I'm looking for places we can take Micah this spring and summer. He can't hit the beach or the pool, so I'm looking for other options. Let me know if you have any recommendations, or would want to come with us! (We're thinking a day, maybe 2 at a time).

Saturday, February 13, 2010

Micah's first tooth!

Micah got his first tooth this week! I never would have guessed he would have gotten a tooth so soon! He's such a big guy!

And tonight, for the first time, Grandma and Grandpa are going to babysit. We've given Micah his marching orders: Don't spit up, don't pull out anything, don't clog your trach off, etc. He's allowed to poop though... he can feel free to get it all out of his system by the time we get back. It's our first date in 3 months.. Yippee!

We can't wait until spring and we can go outside! Boo Winter!

Wednesday, February 10, 2010

Update from Brittany

Sorry that I’ve neglected the blog so long! (And thanks to my mom for keeping it up to date!) Micah has been keeping us very busy for the last few weeks! There’s so much going on, I’ll try to keep it short and sweet. He’s been spitting up a lot, and isn’t eating as much as he should be. He’s still growing, so we can hold out hope something will change and we won’t have to go back to surgery (the surgeon explained our options and they stink.)

Micah is 25” long and weighs 13 pounds, 12 oz which is hard to believe! He’s smiling a lot more (although hardly ever when people are trying to get him to smile, ornery pants!) He’s figured out that fingers are great to put in his mouth. It’s pretty amusing to see him… He’ll study his fingers very carefully, as if to say… hmm… which one do I want to munch on now? He likes to roll over, from his left to his right, but not the other way around. He sort of winds himself up and throws himself over. It’s quite the show. He’s learning to hold his head up when he’s on his stomach, but lets face it… he’s got a big head. J

We were down in Cincy in late January, and we are returning it looks like March 1st-5th. The hospital is great at condensing appointments into as short of time as possible. He has a MRI Monday, a meeting with his docs/ an appointment at the malformation clinic Tuesday, and a ML&B (airway scope) with some lasering of the mass in his airway. This is part one of trying to get the mass out of his airway. After that he will be in the hospital overnight. If that wasn’t enough, they’re trying to schedule an upper GI (check his belly), a FEES (check his aspiration and breathing), and a video swallow study (where they check to see if he’s swallowing liquid or aspirating). He’s had blood in his belly a few times in the last few weeks, so that’s been frustrating because we don’t know where it’s coming from. I keep thinking we’re going back to Cincy, but we haven’t had to go back yet. Let’s keep it that way.
If you’d pray that his feedings would improve, that would be fabulous. He’s only tolerating 2 ½ ounces (run over an hour) ever three hours, which is no good. He should be at least at 4 oz. He gets continuous feeds overnight which we’ve pushed as high as he can tolerate. Well, gotta run, he has to eat now. (Thanks for posting this, mom.)

(P.S. Sarah P. let me know if you get this… sorry I can’t get on facebook to reply to you. I’m glad the baby girl is doing better… How scary! Leave us a msg when they get her heart surgery scheduled. My mom has been reading the carepage to keep us updated on you guys!)