Update from Brittany

Sorry that I’ve neglected the blog so long! (And thanks to my mom for keeping it up to date!) Micah has been keeping us very busy for the last few weeks! There’s so much going on, I’ll try to keep it short and sweet. He’s been spitting up a lot, and isn’t eating as much as he should be. He’s still growing, so we can hold out hope something will change and we won’t have to go back to surgery (the surgeon explained our options and they stink.)

Micah is 25” long and weighs 13 pounds, 12 oz which is hard to believe! He’s smiling a lot more (although hardly ever when people are trying to get him to smile, ornery pants!) He’s figured out that fingers are great to put in his mouth. It’s pretty amusing to see him… He’ll study his fingers very carefully, as if to say… hmm… which one do I want to munch on now? He likes to roll over, from his left to his right, but not the other way around. He sort of winds himself up and throws himself over. It’s quite the show. He’s learning to hold his head up when he’s on his stomach, but lets face it… he’s got a big head. J

We were down in Cincy in late January, and we are returning it looks like March 1st-5th. The hospital is great at condensing appointments into as short of time as possible. He has a MRI Monday, a meeting with his docs/ an appointment at the malformation clinic Tuesday, and a ML&B (airway scope) with some lasering of the mass in his airway. This is part one of trying to get the mass out of his airway. After that he will be in the hospital overnight. If that wasn’t enough, they’re trying to schedule an upper GI (check his belly), a FEES (check his aspiration and breathing), and a video swallow study (where they check to see if he’s swallowing liquid or aspirating). He’s had blood in his belly a few times in the last few weeks, so that’s been frustrating because we don’t know where it’s coming from. I keep thinking we’re going back to Cincy, but we haven’t had to go back yet. Let’s keep it that way.
If you’d pray that his feedings would improve, that would be fabulous. He’s only tolerating 2 ½ ounces (run over an hour) ever three hours, which is no good. He should be at least at 4 oz. He gets continuous feeds overnight which we’ve pushed as high as he can tolerate. Well, gotta run, he has to eat now. (Thanks for posting this, mom.)

(P.S. Sarah P. let me know if you get this… sorry I can’t get on facebook to reply to you. I’m glad the baby girl is doing better… How scary! Leave us a msg when they get her heart surgery scheduled. My mom has been reading the carepage to keep us updated on you guys!)