A more substantial post

Now that I have a fully functioning keyboard... It's less irritating to post.

Since surgery, Micah has had a cold (don't get me started where it came from, trust me). It'll be 3 weeks tomorrow since his surgery. Airway work+cold is not the finest combo. Makes me want to never take him out again.

Today I got a call from the doctors office that our ENT wants us to see regarding Micah's jaw issues. Unfortunately, it's not at Cincinnati Childrens. :( It's practically next door, at University of Cincinnati Hospital. That hospital is... unique. They are very good at a lot of things, one of which being the prenatal/high risk care I received as part of the fetal care program. They're great with trauma and a whole lot of other things, from what I hear... It's also a very intimidating hospital. It's in a bad neighborhood, and get a lot of the shootings and whatnot. Much more dramatic than what I prefer. But, apparently M's ENT thinks highly enough of this guy to send us there, so there we will go. And to boot, we got in on the same day we'll already be down there to see Dr. E at the end of the month... that's a WIN in my book! Hopefully we can get on the path to knowing what's wrong with the poor kids jaw. (In short, it opens probably 1/3-1/2 of what it should, making lots of things rather difficult, most importantly, the surgery necessary to clean up his airway). IF this doc, Dr. K feels like surgery is necessary and is beyond his scope (which isn't out of the question with his LM involvement), we may have to travel to see a team that has a oral-maxillofacial surgeon on their vascular anomaly team (say that 3 times fast...LOL). Somewhere you know, like Boston (dramatic sigh).

In the meantime, we have 3 more weeks til those two appointments. Looking at scheduling another swallow study because... something ain't right. Still. We had a few days that were looking decent, but now, not so much. Hoping it's a short term thing exacerbated by the cold.