He's out...

Micah is out and doing well. Mixed news, but mostly good.

They didn't need to do any lasering in his airway, which is super. Where they got last time looks really good. They did notice, however, that he has laryngomalacia. Essentially, his airway is narrowed near his epiglottis. They'll need to essentially trim some of that back (ouch) to open up his epiglottis. Problem is that when they do that, he may aspirate more if he doesn't have it under control. They're thinking there's a chance that his very narrow epiglottis is why he's not aspirating food and not needing suctioned too much. So unfortunately, we'll see what happens with that... Might be a step backwards.

They were able to do the sclerotherapy in his esophagus and on his face. Hopefully that'll keep the mass in his esophagus under control which might help his swallowing. They also did a small part up near his temple, essentially just to see how it goes. They can only use so much of the medicine at a time, so if it helps, they'll just do little bits at a time. Unfortunately it causes a lot of swelling, so by mouth feeds will be on hold for a few days to a week.

He's all settled in his room now (which is A3 North Room 3, not B5 like we were thinking) The plan is that if all goes well. There's internet access in his room, which will help kill the time.

I think that's it...