Little Micah

So, we finally got out of the hospital at 4pm and headed home. His IVIG went off without a hitch once it finally got going. No adverse reactions at all. But, we are faced with a new problem... The kid has high LDL cholesterol and triglycerides. (Inside I'm saying, are you kidding me! Okay, maybe I said that outloud). The kid is in the like 10th percentile for weight. The kid gets basically JUST pediasure. Everyone is scratching their heads, needless to say. It really feels like everytime we do anything, something else happens. The rapamycin can cause this, but it seems unlikely that's the only problem (it was high after a week of a starter dose). Does the kid need lipitor or something? He's not even two!
So, his IGG level was below 140 (supposed to be at least 350-400), not 240 like I thought. Not only that, this week it was 91. But with the IVIG it should be back in happy land, at least for a month. I'm really starting to pity these doctors trying to keep everything straight.
I have a tendency to play out the future in my head, but I can't even do that anymore. It used to be "do this, then this, then this..." you know, something that resembles a plan.
Here's where I sigh dramatically.