2012 has been quite the year! I can pretty safely say, our house is never a dull place. Micah has had all sorts of new experiences with preschool, and after a rough start to the year, he's (we've all) enjoyed a nice break from the hospital. We have no way to predict what will come our way next year, but we're thankful he's happy and healthy. He continues to be pretty opinionated, and as someone in church said... someday he will get that church microphone that's being passed around for announcements. :) For now, he has fun trying his best to interrupt dad's announcements for the youth. He's a very busy boy, with 4 therapies outside of school and 4 in school and preschool two days a week.
Miss Kyleigh Ann decided to follow in brothers footsteps, and did a little bit of her own "crashing into this world" in September. After leaving a half dozen doctors totally befuddled on what was going on with her, she worked it all out and has been doing fantastic ever since. She's getting SO big, and so strong, wow! That, and she'll talk your ear off if you let her. She may get that honestly. In the last month she's started to laugh, usually at big brothers antics. Certainly there's no shortage of that around here. She's been a really good baby (making up for those first ten days, maybe!).
Travis and I are just trying to keep up with them. He's working 30 hours a week at camp, and 20 at church. Somewhere in there he's squeezing in a Masters program, and will be finished with that this summer. As for me, I spend most of my days juggling the two kiddos and trying to sleep whenever I can!
Monday, December 31, 2012
Sunday, December 16, 2012
Tuesday, December 11, 2012
Micah on the mend...
Micah seems to be doing better. We had a handful of close calls on going to the E.R. We tried to be patient and it paid off... we were able to get his oxygen up high enough w/ breathing treatments, repositioning and a handful of dumb luck. Now he seems to be on the mend, and no worse for the wear... He's still coughing a lot and has shared it with sister, despite our efforts. Hopefully she doesn't have as much trouble as he did.
Sunday, December 9, 2012
Poor little man
Our poor little man has had a terrible cold since Monday. Every time he seems to be turning the corner, he goes down again. We've been very close to leaving for the E.R. on a number of occasions. He's been having trouble overnight holding up his oxygen levels and has been coughing up blood on numerous occasions. We need to avoid pneumonia, that's the big thing. After some emails between us and our ENT in Cincy (God bless him) and calls to the ped, we're going to try an antibiotic to be sure he doesn't have multiple things going on.
Monday, November 26, 2012
Kyleigh update, 2 months
Little Miss Kyleigh is doing quite well. She's growing very fast! She was 10 pounds 11 oz at her 2 month appointment! She's outpaced her brother from the get-go! She's very chatty when she wants to be... and she still loves her pacifier. She's been sharing her brothers colds that he brings home from therapy and preschool, but she's been able to get over them pretty easily so far.
Saturday, November 24, 2012
Wednesday, November 21, 2012
Saturday, November 10, 2012
Long day, decent day
PHEW. Home from a long day to and from
Cincinnati. Both children traveled amazingly well. She slept almost
the entire time (when i'm on at 3 am you can remind me how "great" that
was...) and he traveled pretty well, but got a 5:30pm nap (and he'll
probably be up at 5!)
The gist of the story is this... He was trialed on a speech valve that has no holes and did amazingly well, hooray! This is a
The gist of the story is this... He was trialed on a speech valve that has no holes and did amazingly well, hooray! This is a
big gain from 3 months ago.
The surgeon scoped him through his nose, which is utter torture. From
what little he could see, his airway seems to be pretty steady. He can
do some surgery in the airway, probably enough to beat it into
submission, but nowhere near enough to get the trach out. We have some
options to see if we can push the envelope again, so we'll see what the
oral/maxillofacial surgeon says. They tried to do a hearing screen, but
he was so exhausted from the scope he was nodding off. The audiologist
recommended we stay with the ABR, the one under anesthesia for the time
being. Right now we have no plans for another surgery, maybe 6 months
or so if things haven't changed in 3 months.
Win some, lose some.
Win some, lose some.
Morning update: Little girl was up from 5-6, but fell asleep again... He got up at 5:30, not too bad! We're still a little sleepy eyed. We put his speech valve on him this morning for the first time since the trial and he's doing really well with it. He's worn it for about a half hour so far. He's been coughing a fair bit, but that's not uncommon. The air coming through his mouth reminds him to swallow the saliva in the back of his mouth.
Monday, November 5, 2012
Busy...
Here's a smile from the pretty girl.
We return to Cincinnati this week.. We haven't been there in what feels like a long time (3 months maybe?)! The plan is to follow up with ENT, get a hearing screen and attempt to get him a less modified speech valve. We may start to put a date on the next surgery, but not sure. We are going to do all this in a day... with a baby... We'll see how crazy this goes... At some point she'll probably stay with the grandparents for these days, but if we wen't down there without her there might be some complaining...
Unfortunately that erases Trav's day off (today), and he was a meeting tonight til 9:30-10:00...
We return to Cincinnati this week.. We haven't been there in what feels like a long time (3 months maybe?)! The plan is to follow up with ENT, get a hearing screen and attempt to get him a less modified speech valve. We may start to put a date on the next surgery, but not sure. We are going to do all this in a day... with a baby... We'll see how crazy this goes... At some point she'll probably stay with the grandparents for these days, but if we wen't down there without her there might be some complaining...
Unfortunately that erases Trav's day off (today), and he was a meeting tonight til 9:30-10:00...
Saturday, November 3, 2012
Wednesday, October 31, 2012
Sunday, October 21, 2012
Monday, October 15, 2012
Sunday, October 14, 2012
Busy, busy, busy!
After a follow up appointment with both the pediatrician and surgeon, she's been given a clean bill of health. We are so grateful! However, we weren't given much explanation to what went on, it's still at the point where everyone has an opinion about what happened, but no one is sure. The good news is that she's healthy and doing very well. These issues are unlikely to reappear, at least that's the going thought... a little hard to say for sure since no one is sure what happened in the first place. She's growing very well and is a pretty good little sleeper. Sorry for not getting pictures up lately... they'll be coming soon!
Thursday, October 11, 2012
Kyleigh's second night
Travis went home that evening to stay with Micah, despite all the drama. The nurses talked me into sleeping on the OB side for a few hours... The Nicu was really busy that night with an emergency surgery on the floor (never a good day), so we really weren't supposed to be over there anyway. At about midnight i went over to check on her and caught one of the neonatologists that was there for the surgery. He explained that he'd examined the ultrasounds they'd done during the day, and that they saw something that appeared to be a mass in her abdomen, between her spleen and her stomach. it was about 1x1" and appeared to be not attached to either organ, but it was hard to tell. He wanted to do a CT scan immediately to get more information (of course there was a multiple trauma car accident that night and radiology was really busy). He also advised us that since he wasn't sure what it was, we should be prepared for possibly doing surgery in the next 24-48 hours.
I'm pretty sure after he explained all of this my reply was, "What?!" No one had mentioned any sort of mass, the ultrasounds were supposed to be of the area of her intestines that was of concern. Thanks be to God, the doctor on that night is probably the sweetest and easiest one to talk to in the group. He did his fellowship at Cincinnati Childrens, and has the great bedside manner to prove it. Anyways... so here I was, trying to figure out what to do. Do I call Trav is the middle of the night and have him drag Micah out? At least I had my wits about me enough to realize I could call my parents and have them come over to our house and have Travis come up here. My parents were already having a heck of a week with her in the nicu and my grandpa in the hospital, but they'd kill me if I didn't call, so I did. Don't remember when exactly Travis got up there, but they got her down for a CT at around 5 am. The doctor came by shortly after (if i remember right) and explained that whatever was on the ultrasound, there was absolutely nothing on the CT scan... Whatever it was had disappeared or never was there to begin with! To this day there's still debate on what went on that night. We'll rack it up to Hartman family miracle # who knows how many. We were so relieved beyond imagination and promptly passed out in the hospital couch and chair. LONG night.
I'm pretty sure after he explained all of this my reply was, "What?!" No one had mentioned any sort of mass, the ultrasounds were supposed to be of the area of her intestines that was of concern. Thanks be to God, the doctor on that night is probably the sweetest and easiest one to talk to in the group. He did his fellowship at Cincinnati Childrens, and has the great bedside manner to prove it. Anyways... so here I was, trying to figure out what to do. Do I call Trav is the middle of the night and have him drag Micah out? At least I had my wits about me enough to realize I could call my parents and have them come over to our house and have Travis come up here. My parents were already having a heck of a week with her in the nicu and my grandpa in the hospital, but they'd kill me if I didn't call, so I did. Don't remember when exactly Travis got up there, but they got her down for a CT at around 5 am. The doctor came by shortly after (if i remember right) and explained that whatever was on the ultrasound, there was absolutely nothing on the CT scan... Whatever it was had disappeared or never was there to begin with! To this day there's still debate on what went on that night. We'll rack it up to Hartman family miracle # who knows how many. We were so relieved beyond imagination and promptly passed out in the hospital couch and chair. LONG night.
Sunday, October 7, 2012
The post I don't care to relive. (part 1)
The second 12 hours.
The Nicu nurse practicioner came to us to examine Kyleigh. She appeared healthy and with no cause for concern other than what they'd already seen. They decided to run x rays and remove some of her belly contents to send off to the lab. The lab results would be at least 24 hours, but the x rays were pretty much immediate. She left and shortly after returned with the neonatologist, who we had with Micah, but didn't remember us right away. They explained that the x ray showed pneumatosis. (We weren't at all familiar with this diagnosis...) They explained that the the bowel was likely infected and the lining had cysts in the wall. This however, had nothing to do with the vomiting blood. However, she didn't appear sick, and that infants with pneumatosis typically appear very ill... They also explained that in this neonatologists 12 years of practice, he'd almost never seen a full term infant with this condition. Things really didn't add up. The protocol for the pneumatosis was 7 days of no food and antibiotics, and obviously she needed to go to the Nicu right away.
And I LOST it.
I almost never lose it. Sometimes with medical things I get visibly frustrated or a little teary eyed, but I hadn't lost it since they day Micah was born, when they told me they had to send me to a different hospital after he was born, and that I wouldn't get to see him for at least a day. (That was not the plan).
Poor doctor, LOL.. I sobbed and sobbed and tried to spit out that we'd been through this all before and this was my HEALTHY baby... that i had one already one with a feeding tube... (of course there was a big logical gap between where she was and a feeding tube, but no one was going to try to reason with me.)
They gave us about a half an hour or an hour with her before they whisked her away. My recovery time was over, all 24 hours of it. That beat Micah's 18 hours i was separated from him. You don't realize how nice it is to lay in bed and have your baby handed to you... to pass the baby around with family (and we were glad we'd had a lot of people in the day before).... that was over now.
They insisted we stay out of her room for the first hour or two while they place and i.v, a tube in her nose, ran labs and tests. We explaied we've seen all of these things plenty with Micah, but they insisted. That is such a crappy feeling, that they're taking your baby and are going to do these things, but oh, you can't be there to comfort them. UGH.
They put a huge tube in her nose (a 10 fr!) to drain the contents of her stomach, since they were still having blood coming out (and it came out for a few days). Blood in the tummy is extremely irritating and they wanted to stop her vomiting. At that point she wasn't totally miserable because of no food, since newborns belly's are the size of a marble and they don't really need anything for the first day or two. She was on i.v. fluids, basically sugar water, so she'd feel more stable and get needed fluids.
We all filed through to see her, and i came and went from the OB floor to the Nicu... They were MUCH closer than Cincy which was nice. What wasn't nice was having to walk past the newborn nursery everytime I went to my room... And hearing the babies crying throughout the night, only to realize it wasn't yours. It was miserable. My OB stopped by that afternoon and caught me in my room... unfortunately she was totally oblivious to what was going on. This poor lady had no idea... She tried SO darn hard for this to all go smoothly, to treat the pregnancy as normal as possible... the whole bit. Of course, i didn't keep it together trying to explain it to her either. She was so sweet and supportive, and reassured me she was in good hands. My delivery nurse stopped by to offer a hug, as did Micah's speech therapist. (who also had no idea what had gone on, poor lady too!)
(Had to change this to the next twelve hours, not up for explaining the next twelve yet... Maybe another day...)
The Nicu nurse practicioner came to us to examine Kyleigh. She appeared healthy and with no cause for concern other than what they'd already seen. They decided to run x rays and remove some of her belly contents to send off to the lab. The lab results would be at least 24 hours, but the x rays were pretty much immediate. She left and shortly after returned with the neonatologist, who we had with Micah, but didn't remember us right away. They explained that the x ray showed pneumatosis. (We weren't at all familiar with this diagnosis...) They explained that the the bowel was likely infected and the lining had cysts in the wall. This however, had nothing to do with the vomiting blood. However, she didn't appear sick, and that infants with pneumatosis typically appear very ill... They also explained that in this neonatologists 12 years of practice, he'd almost never seen a full term infant with this condition. Things really didn't add up. The protocol for the pneumatosis was 7 days of no food and antibiotics, and obviously she needed to go to the Nicu right away.
And I LOST it.
I almost never lose it. Sometimes with medical things I get visibly frustrated or a little teary eyed, but I hadn't lost it since they day Micah was born, when they told me they had to send me to a different hospital after he was born, and that I wouldn't get to see him for at least a day. (That was not the plan).
Poor doctor, LOL.. I sobbed and sobbed and tried to spit out that we'd been through this all before and this was my HEALTHY baby... that i had one already one with a feeding tube... (of course there was a big logical gap between where she was and a feeding tube, but no one was going to try to reason with me.)
They gave us about a half an hour or an hour with her before they whisked her away. My recovery time was over, all 24 hours of it. That beat Micah's 18 hours i was separated from him. You don't realize how nice it is to lay in bed and have your baby handed to you... to pass the baby around with family (and we were glad we'd had a lot of people in the day before).... that was over now.
They insisted we stay out of her room for the first hour or two while they place and i.v, a tube in her nose, ran labs and tests. We explaied we've seen all of these things plenty with Micah, but they insisted. That is such a crappy feeling, that they're taking your baby and are going to do these things, but oh, you can't be there to comfort them. UGH.
They put a huge tube in her nose (a 10 fr!) to drain the contents of her stomach, since they were still having blood coming out (and it came out for a few days). Blood in the tummy is extremely irritating and they wanted to stop her vomiting. At that point she wasn't totally miserable because of no food, since newborns belly's are the size of a marble and they don't really need anything for the first day or two. She was on i.v. fluids, basically sugar water, so she'd feel more stable and get needed fluids.
We all filed through to see her, and i came and went from the OB floor to the Nicu... They were MUCH closer than Cincy which was nice. What wasn't nice was having to walk past the newborn nursery everytime I went to my room... And hearing the babies crying throughout the night, only to realize it wasn't yours. It was miserable. My OB stopped by that afternoon and caught me in my room... unfortunately she was totally oblivious to what was going on. This poor lady had no idea... She tried SO darn hard for this to all go smoothly, to treat the pregnancy as normal as possible... the whole bit. Of course, i didn't keep it together trying to explain it to her either. She was so sweet and supportive, and reassured me she was in good hands. My delivery nurse stopped by to offer a hug, as did Micah's speech therapist. (who also had no idea what had gone on, poor lady too!)
(Had to change this to the next twelve hours, not up for explaining the next twelve yet... Maybe another day...)
Wednesday, October 3, 2012
Baby Kyleigh, the first 24 hours...
So I haven't/haven't been able to share many details about the last almost 2 weeks. So, here goes. We'll start with the happy part.
Rumor has it I'm (Brittany) pretty stubborn. I didn't want Micah to wake up the day she was born and not have one of us there, so Travis stayed home til he got up and then met me at the hospital about an hour after I had to be there. My admitting/surgery nurse was a sweet, amazing woman. Due to all the pre-op questions, Micah's story started to come out. We both agreed this would be a planned, smooth going event. She went through all the details when I asked her to, and I was feeling WAY more calm than Travis by the time we went to the OR. He was ready to get it over with! Much to everyone's surprise the OR was running on time, and we went back. Everything went well and was much more relaxing than the pre op process with Micah. When the doctor came into the O.R. she commented that we'd made it full term... and that she didn't think I thought we'd ever get to this point... and she was right!
When she was born, the doctor said, and i quote... "no nicu this time" and "she's perfect!" We got to see her briefly, and Travis went over to her bed to check on her. Her color was slightly off, but she was screaming in no time. When they were fixing me up, she went off the nursery to get cleaned off and wrapped up. Her body temp was a little low (maybe because the OR was freezing! Even the O.R. nurse said it was colder than normal!) so she had to stay there until her temp got up, she got a bath, then got her temp up again. Sadly that was probably an hour or more. :( Trav had the camera and was going back and forth taking video and pics so i could see her.
The next few hours were a little morphine hazed, but she was good and being passed around the family. She was nursing well but spitting up sometimes. We opted to have her sleep in the nursery in case she continued to spit up, which she did.
As you can see, we were all thrilled beyond belief at our sweet little girl... even Micah was sold on her once he got over the "what on earth is going on" factor. :) She slept really well overnight (and still does, mostly!) and we all got a little rest. Next morning she relaxed with all of us and was nursing, but spit up after every attempted feeding. That morning she spit up a pretty good amount of old dark blood. We were assured by multiple people that it's not uncommon and she probably swallowed blood during delivery. Since blood is really irritating, that was probably causing her tummy troubles. Next feeding though, she spit up bright red blood. Not a ton, mixed with saliva it made a couple quarter sized stains. This, however, is NOT normal, and the medical staff started moving much more quickly...
All in the first 24 hours.
Rumor has it I'm (Brittany) pretty stubborn. I didn't want Micah to wake up the day she was born and not have one of us there, so Travis stayed home til he got up and then met me at the hospital about an hour after I had to be there. My admitting/surgery nurse was a sweet, amazing woman. Due to all the pre-op questions, Micah's story started to come out. We both agreed this would be a planned, smooth going event. She went through all the details when I asked her to, and I was feeling WAY more calm than Travis by the time we went to the OR. He was ready to get it over with! Much to everyone's surprise the OR was running on time, and we went back. Everything went well and was much more relaxing than the pre op process with Micah. When the doctor came into the O.R. she commented that we'd made it full term... and that she didn't think I thought we'd ever get to this point... and she was right!
When she was born, the doctor said, and i quote... "no nicu this time" and "she's perfect!" We got to see her briefly, and Travis went over to her bed to check on her. Her color was slightly off, but she was screaming in no time. When they were fixing me up, she went off the nursery to get cleaned off and wrapped up. Her body temp was a little low (maybe because the OR was freezing! Even the O.R. nurse said it was colder than normal!) so she had to stay there until her temp got up, she got a bath, then got her temp up again. Sadly that was probably an hour or more. :( Trav had the camera and was going back and forth taking video and pics so i could see her.
Pretty clear on how she felt about our cold, cold world :) |
The next few hours were a little morphine hazed, but she was good and being passed around the family. She was nursing well but spitting up sometimes. We opted to have her sleep in the nursery in case she continued to spit up, which she did.
As you can see, we were all thrilled beyond belief at our sweet little girl... even Micah was sold on her once he got over the "what on earth is going on" factor. :) She slept really well overnight (and still does, mostly!) and we all got a little rest. Next morning she relaxed with all of us and was nursing, but spit up after every attempted feeding. That morning she spit up a pretty good amount of old dark blood. We were assured by multiple people that it's not uncommon and she probably swallowed blood during delivery. Since blood is really irritating, that was probably causing her tummy troubles. Next feeding though, she spit up bright red blood. Not a ton, mixed with saliva it made a couple quarter sized stains. This, however, is NOT normal, and the medical staff started moving much more quickly...
All in the first 24 hours.
Sunday, September 30, 2012
Thursday, September 27, 2012
Baby girl updates
Wednesday: Kyleigh got to eat today!!! She loved every drop. Plan is to start slow and increase as she tolerates
Prayers please for me this time. Having complications. The e.r. told me to wait til a.m.. to see what.my doc wanted to do. Now its morning and things are considerably worse.
Thursday: from mom: Keep Brittany Weaver Hartman in your prayers, her incision came open last night. She is in the OR right now to close it up.
Well they put humpty back together again. Not my favorite day.. kyleigh is doing fine. She has been able to get all her bottles!
Friday: We are increasing her feedings... hoping her tummy will move a little faster... she gets 20 ml or 2/3 oz. Per feeding.
She's up to 25 mL's per feeding, and if all goes well she'll hit the one oz mark at midnight!!!
These are a few days old, but i'm way behind getting things up. i can't get on blogger from our tablet, and Trav's had the laptop to do school papers. So sorry.
The plan is to increase her feedings today and Friday, and probably be up to full feeds on Saturday if all goes according to plan. Her x rays are good so far and labs are great. We got her belly moving (that's the nice way of saying it) because the barium seemed to be holding things up. Hopefully this solves our belly problem... if not we might need to figure that out as well.
if you want to visit call/text one of us, so we can TRY to avoid having a ton of people at the same time. With only one visitor coming back at a time, it can take awhile. Please only visit if you're healthy and over 18.
Prayers please for me this time. Having complications. The e.r. told me to wait til a.m.. to see what.my doc wanted to do. Now its morning and things are considerably worse.
Thursday: from mom: Keep Brittany Weaver Hartman in your prayers, her incision came open last night. She is in the OR right now to close it up.
Well they put humpty back together again. Not my favorite day.. kyleigh is doing fine. She has been able to get all her bottles!
Friday: We are increasing her feedings... hoping her tummy will move a little faster... she gets 20 ml or 2/3 oz. Per feeding.
She's up to 25 mL's per feeding, and if all goes well she'll hit the one oz mark at midnight!!!
These are a few days old, but i'm way behind getting things up. i can't get on blogger from our tablet, and Trav's had the laptop to do school papers. So sorry.
The plan is to increase her feedings today and Friday, and probably be up to full feeds on Saturday if all goes according to plan. Her x rays are good so far and labs are great. We got her belly moving (that's the nice way of saying it) because the barium seemed to be holding things up. Hopefully this solves our belly problem... if not we might need to figure that out as well.
if you want to visit call/text one of us, so we can TRY to avoid having a ton of people at the same time. With only one visitor coming back at a time, it can take awhile. Please only visit if you're healthy and over 18.
Wednesday, September 26, 2012
Sunday, September 23, 2012
Kyleigh day 4
Pretty much everyday in the nicu has its good moments and bad moments. Her morning x ray showed the pneumatosis was a little worse than yesterday, but not as bad as Friday. She has more blood in her belly than yesterday too. They sent it off to see if it's still my blood or if it's hers... most people vote it's probably hers. They started zantac in case, which seems a really wise move in case there's any slight upper gi bleeding. Her blood levels are good, her h/h are going up, if she had any signifcant bleeding, they'd be going down. The docs are slightly baffled because she acts so well... But the plan is to play it safe and stay w/ the 7 days of antibiotics and no food. They're not resetting our 7 days quite yet, they'll see what tomorrows x-ray says first. She's fiesty and strong and adorable and we can't wait to bring her home.
Saturday, September 22, 2012
Little sweetie is doing pretty well. We'll be here at least another 7-10 days, unfortunately. Her belly needs to rest from the infection and irritation before she can eat again. She's getting all her nutrition through an i.v. She still has a tube in her nose that's draining all the dried blood from her belly... we're hoping the drainage stops soon and that can get that out. Hopefully its uphill from here... what a day.
Friday, September 21, 2012
Wednesday, September 19, 2012
Only a few more hours...
Guess who isn't sleeping well tonight?!
Watch for updates, we'll get them up as soon as we can!
Watch for updates, we'll get them up as soon as we can!
Tuesday, September 18, 2012
A very pregnant woman's guide to decision making.
Being that I'm new at this level of pregnantness, I figured I'd share some observations to common dilemmas pregnant women face.
Problem 1: Dropped something on the floor? Question: Do I need it? Answer: Yes. Question: Do I really need it? Yes. Can I pick it up with my foot? (Always worth a try)... No? Can it be kicked out of the way? No?! Is it REALLY a tripping hazard? Yes.... Can someone else do it for me??? NO? Then I really probably don't need it anyway.
Problem 2: Need to go to the bathroom... Question: Right now? Answer: (Always) YES. Now. You can either go now, or run to the bathroom in approximately 2 minutes. Go now, pregnant people aren't cute when they run... or waddle.
Problem 3: Baby always wakes up when i try to go to bed... Every.single.time. Solution: About an hour before bed, once little man is asleep, lay down for about ten minutes... Really still. Baby gets up, has her miniature dance party, and is asleep by the time you really wanted to go to bed (which was actually about 3 hours ago, but lets be realistic here.)
:)
40 more hours....
Problem 1: Dropped something on the floor? Question: Do I need it? Answer: Yes. Question: Do I really need it? Yes. Can I pick it up with my foot? (Always worth a try)... No? Can it be kicked out of the way? No?! Is it REALLY a tripping hazard? Yes.... Can someone else do it for me??? NO? Then I really probably don't need it anyway.
Problem 2: Need to go to the bathroom... Question: Right now? Answer: (Always) YES. Now. You can either go now, or run to the bathroom in approximately 2 minutes. Go now, pregnant people aren't cute when they run... or waddle.
Problem 3: Baby always wakes up when i try to go to bed... Every.single.time. Solution: About an hour before bed, once little man is asleep, lay down for about ten minutes... Really still. Baby gets up, has her miniature dance party, and is asleep by the time you really wanted to go to bed (which was actually about 3 hours ago, but lets be realistic here.)
:)
40 more hours....
This sums it up.
So, I've been trying not to post a downer blog for awhile, but here it is. (A big TY to my friend Tracy for chatting with me last night and trying to help find ways get make things better... i really appreciate it.)
Another mom blogger said it way better than i can, so here's an excerpt. Her daughter has different challenges than Micah, but you get the idea.
Yep, that pretty well sums it up.
Another mom blogger said it way better than i can, so here's an excerpt. Her daughter has different challenges than Micah, but you get the idea.
So, I put Harlie in the car and we go to her Daisy meeting. I get her out of the car and one of the moms happens to be in the parking lot getting something from her car. She comes over and says hello and asks me how I'm doing. And I started to cry. Ugh. I didn't want to. But, I was just so overcome with sadness for Harlie. For how much she has to deal with. For how much we have to deal with. For how incredibly hard it is to do normal things. I can't tell you the effort that goes behind everything we do! And the drooling. It just makes everything THAT much more difficult.http://lifesinceharlie.blogspot.com/2012/09/some-days-are-just-hard.html
It's the proverbial straw. We've handled and dealt with so much, but it's the drooling that's going to push us over the edge. But, what are we going to do? Stop dealing with it? Well, that's not an option. Tonight one of the girls sat next to Harlie and squealed, "Ewww!" when she drooled. I know. I get it, sweetheart. It's gross. And I don't blame you for thinking that. But she can't help it. And it breaks my heart. Then they started to play duck, duck, goose. Not exactly the best game for a kid who can't talk or run. But, she didn't care. And she did it. She didn't sit in the right place when her turn was over. And one of the girls said, "That's okay, Harlie, you can sit wherever you want to." And I wanted to cry all over again.
The reality of knowing that there will be no true break (from heart break or the physical demands) in the future is exhausting in itself. No weekend away would ever be able to touch the heaviness of all that's involved with a child like Harlie. We've left the medically fragile intensity of years past and entered the emotionally difficult phase. With medical oddities and challenges thrown in. And when I find myself asking God to make things easier for us, I take it back. Because I know it won't ever be easier. As long as she's here, she's going to have challenges to deal with to try to overcome, or accept. So I tell God, never mind. Just give us the strength, okay?
Yep, that pretty well sums it up.
Monday, September 17, 2012
A case of the giggles to rival Anderson Cooper :)
We got a new app for our Nook Color (thank you grandma and grandpa for the birthday gift card!) We've been wanting to get a few things to occupy him when baby sister comes. Needless to say, this one was a winner (it's "Monkey Lunchbox Preschool"). Unfortunately, the funniest thing that happens is when you get something wrong... So, not a lot of learning going on :) Cute app though, and very age appropriate. This morning it wasn't nearly as funny, but still entertaining, so i'm glad i got the video when i did! if you need a laugh, you've come to the right place!
And if you don't get the Anderson Cooper reference, here it is... i've watched it probably ten times, and laugh every.single.time!
Baby sister seems to be doing fine and planning on hanging in there til Thursday. We're about as ready as we're going to get, i suppose... Things aren't coming together perfectly smoothly, but oh well. As i told someone yesterday.. things have been crazy and unpredictable for the last 3 years, why stop now?
We SOOOO appreciate all the prayers and joy w/ this baby... We didn't get a "fun, easy" pregnancy last time, and we're having such a good time around this time. A couple in our church have been especially funny, as they have two little ones and know exactly what's coming! :) We also are so grateful for all the yummy food that's showed up on our doorstep over the last few days... Our fridge and freezer are full... Such a blessing!
Mitochondrial Disease Awareness Week
Mitochondrial
Disease Awareness Week. About one in 4,000 children in the United
States will develop mitochondrial disease by the age of 10 years.
Mitochondrial disease is progressive and has no cure. More children die
from mito than cancer, and yet it doesn't have nearly the same kind of
support or awareness. Mitochondria are the energy centers of cells,
without enough energy to power the body, organ systems begin to fail. A
number of children who have mito need feeding tubes and so I know far
too many children with this disease.
We're supporting our Mito friends this week!
Tuesday, September 11, 2012
Black Pine Animal Sanctuary
For those of you from the area, you should visit Black Pine Sanctuary... it's pretty neat, and a bit different than your typical zoo. The animals are up close and personal, their chimp was super friendly and Micah couldn't be more thrilled and one of the birds talks (and mutters funny things if you listen closely enough...) We had a good time.
Friday, September 7, 2012
Photo Card
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Big ornery boy!
Well, well, well... Mr. Micah has grown a TON! He's in the 85th percentile in height, and about 60th for weight. Big stuff! No wonder lots of people assume he's older. So nice to hear a doctor say that i've got a healthy kiddo! :)
Here's the ornery boy. :)
Friday, August 31, 2012
Thursday, August 30, 2012
You can't make this stuff up...
The little man's work calendar this week:
Monday: Hospital Speech therapy (1-1:45) and Occupational Therapy (2:00-2:45)
Tuesday: School (8-10:30), including School ST, OT and Physical therapy, and Early intervention PT (12:30-1:30)
Wednesday: Speech (8:45-9:30) PT evaluation (9:30-10:30)
Thursday: School (8:00-10:30)
Friday: New hospital based ST evaluation (2:15-3:15)
(and i haven't missed anything so far!)
Wowwwie, and no small wonder he's napped great yesterday and today! He's had a little overlap between his early intervention (stops at age 3) and hospital therapies, and now school too! When it's all said and done he should get 2-45 minute speech therapies @ hospital, 2-20 minute ST at school and 1-45 min hospital OT and PT, and 1-20 minute OT and PT at school.
School continues to start rough everyday, some more than others, but usually he's his typical self about an hour into it. The teachers and staff have been amazingly accomodating for him, and he has a really small class which is beyond ideal at this point. We've been noticing he gets very easily upset/agitated at a handful of high sensory experiences (especially related to noise), so we'll have to meander down that road and try to figure out what's up....
We're putting a trip to Cincinnati on the calendar despite the timing... it'll be oh, 15 days after baby is born! There's a great conference for families that are dealing w/ vascular anomalies. We've got two appts on the calendar the day before the conference, and hoping to get a third. He REALLY needs a hearing screen, especially w/ all this sensory crud going on.
Life's never dull, eh?
Monday: Hospital Speech therapy (1-1:45) and Occupational Therapy (2:00-2:45)
Tuesday: School (8-10:30), including School ST, OT and Physical therapy, and Early intervention PT (12:30-1:30)
Wednesday: Speech (8:45-9:30) PT evaluation (9:30-10:30)
Thursday: School (8:00-10:30)
Friday: New hospital based ST evaluation (2:15-3:15)
(and i haven't missed anything so far!)
Wowwwie, and no small wonder he's napped great yesterday and today! He's had a little overlap between his early intervention (stops at age 3) and hospital therapies, and now school too! When it's all said and done he should get 2-45 minute speech therapies @ hospital, 2-20 minute ST at school and 1-45 min hospital OT and PT, and 1-20 minute OT and PT at school.
School continues to start rough everyday, some more than others, but usually he's his typical self about an hour into it. The teachers and staff have been amazingly accomodating for him, and he has a really small class which is beyond ideal at this point. We've been noticing he gets very easily upset/agitated at a handful of high sensory experiences (especially related to noise), so we'll have to meander down that road and try to figure out what's up....
We're putting a trip to Cincinnati on the calendar despite the timing... it'll be oh, 15 days after baby is born! There's a great conference for families that are dealing w/ vascular anomalies. We've got two appts on the calendar the day before the conference, and hoping to get a third. He REALLY needs a hearing screen, especially w/ all this sensory crud going on.
Life's never dull, eh?
Wednesday, August 29, 2012
Kyleigh Ann
it's official....Kyleigh Ann has outlasted her big brother Micah as a "bun in the oven!" (And as a little sister, i can appreciate that she needs to have the "upper hand" as often as possible). To celebrate, she gets a name! :) LOL!
Busy, busy boy!
We've been busy living it up over here :) He's been very busy adjusting to preschool (hasn't exactly been smooth) and two new therapies at Lutheran. He has more of a social calendar than me! Boo!
As usual, he's a little ham (when he wants to be!) and here's some of our end of summer fun.
As usual, he's a little ham (when he wants to be!) and here's some of our end of summer fun.
Our new big boy room. He's in love with it... :) |
Take my picture, mom! |
Party in the front yard! |
Apparently he has fond memories of his old car seat. Gotta dig all that stuff out now! |
Trach or not, he's totally obsessed with water :) Play on (safely), little man! |
Monday, August 27, 2012
Welcome!
Welcome to all of you coming from the Mommies of Miracles "mi-RARE-cles" blog! Micah's story (the short version) can be found here!
http://www.littlemicah.blogspot.com/search/label/Micahs%20Medical%20Miracle%20Story
http://www.littlemicah.blogspot.com/search/label/Micahs%20Medical%20Miracle%20Story
Thursday, August 16, 2012
Coming soon (but not too soon!)
Baby Girl Hartman scheduled to make her arrival on September 20th :) 5 more weeks!
Wednesday, August 15, 2012
Wednesday, August 8, 2012
This time has been different.
Well, the good news is that this pregnancy has been very different than with Micah.
That's very good news.
By this point with Micah, I'd been on bed rest for 3 weeks, and in the hospital for a week. Here's the view from 3 years ago.
Well, it's Friday. It's good people remind me, or else I might forget.
Hopefully lots of the youth are having fun at movie night tonight.
Not much new to report today. They tried me on a third medicine to stop the contractions. So far, it doesn't seem to be doing anything. The good news is that the contractions aren't changing anything, and they don't seem to be getting any worse.
Kudos to anyone who has been in the hospital for more than a few days... It's driving me crazy. Thankfully I have a wonderful hubby that is taking good care of me.
Pray specifically that Micah doesn't come over the weekend... It's just not a good/easy time in hospital-land to make something happen (like his complicated delivery). The maternal-fetal doctor is pretty pleased that nothing has changed. I'm trying to keep it that way (as if I had a choice, right).
Have a good weekend... God bless
Brittany
(P.S. The ultrasound on Monday showed that Micah has hair! I forgot to mention that! He must take after his daddy).
-----------------
My, how different. This time i've got to actually function in reality and i've got the nearly 3 year old that's exhausting me... And apparently, the lesson of the day is that the 8 month mark is probably when i should stop wearing flip flops.... Owwwwie! Not that it'll probably stop me. Rumor has it I'm pretty stubborn.
That's very good news.
By this point with Micah, I'd been on bed rest for 3 weeks, and in the hospital for a week. Here's the view from 3 years ago.
Friday, August 7, 2009
Nothing new...
Not much new to report today. They tried me on a third medicine to stop the contractions. So far, it doesn't seem to be doing anything. The good news is that the contractions aren't changing anything, and they don't seem to be getting any worse.
Kudos to anyone who has been in the hospital for more than a few days... It's driving me crazy. Thankfully I have a wonderful hubby that is taking good care of me.
Pray specifically that Micah doesn't come over the weekend... It's just not a good/easy time in hospital-land to make something happen (like his complicated delivery). The maternal-fetal doctor is pretty pleased that nothing has changed. I'm trying to keep it that way (as if I had a choice, right).
Have a good weekend... God bless
Brittany
(P.S. The ultrasound on Monday showed that Micah has hair! I forgot to mention that! He must take after his daddy).
-----------------
My, how different. This time i've got to actually function in reality and i've got the nearly 3 year old that's exhausting me... And apparently, the lesson of the day is that the 8 month mark is probably when i should stop wearing flip flops.... Owwwwie! Not that it'll probably stop me. Rumor has it I'm pretty stubborn.
Monday, August 6, 2012
Saturday, July 28, 2012
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