So, we've made some moves to switch M's surgery to May, if possible. The August idea seemed worse and worse as time went on. We've put in the call, now they have to try to work their magic. The one doc is only in the OR 6 days in May (that's not too unusual) but the scheduler said he's pretty open... Now to coordinate with the other mandatory surgeon, and then hope to get in with the third for sclerotherapy. Not to mention the other disciplines i'd love to get out of the way (audiology, dentistry) but i'll settle this time.
We've made some feeding progress lately, and this surgery will kill it all, and that's so frustrating i can't even put words to it. The good part is we've made tube feeding progress and can get all his calories in by tube, which is the first time in awhile.
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