Good news, there was big old macrocyst over his right temple (5.5x3.5x2.5 cm). They drained about 30-45 mL's (1-1 1/2 oz). They put in doxycline (the sclerotherapy agent) and a drain, and will drain it tomorrow. Hopefully the doxy will shut it down and we'll have a strickingly noticable result.. LOL, almost too much, they say. it'll be flat, or maybe sunken in. Oh well, we've had worse results.
The bad news... his jaw is in bad shape. Bad, bad shape. And the only options left are "radical"... and waiting. His TMJ is functional (the joint itself)... but his mouth won't open much (only 1cm). There's a muscle that opens and closes the jaw, 1 of 3 muscles, that's enveloped in LM. That causes it to be tight, essentially (think muscle cramp) permanently. They could try to cut the LM off the muscle, but it probably won't help. They can cut the muscle entirely to release the pressure, but then of course, it's gone for good. He would learn to compensate, but it's a pretty bad deal. Even with this, they can't guarantee they'd get enough of an opening (they need 1 more cm, so double what we have now!) The other, even worse deal is basically splitting his mandible, and being able to move it out of the way to get to his airway. There's multiple problems with this, as you can imagine. One, we need access multiple times over months or years to clear up his airway. We can't do this over and over again, that's a massively big deal.
There's also the question of what's wrong w/ the mandible... Which is apparently up by his cheek... oh man. That can't be good! The real question is whether the bone itself has been infiltrated by the LM. And oddly enough, they couldn't tell from the mri... So, not sure if there's any way to tell for sure. What i'm not sure of, is how big of a deal this is. it could obviously affect bone strength, and could cause more growth of the LM, but not sure if this is a cross that bridge deal or not. The only option there is removing that part of the bone. His mandible. This is obviously not good, and i'm not sure i understand enough about what's going on to say much more.
And we got labs, and they're not super hot either. His WBC is low (2.9), RBC is a little low, (3.77) his hemoglobin was a little low (11.1) and his hematocrit was a little low as well (31.8). (Numbers for your nerds who have a clue what they mean). Really, the WBC concern me, the rest are close or close enough for his. His igg is borderline low (403)... so we'll see about all these things.
That's all i got for now.
He's doing fine, not at all happy to have an iv in his foot, though. Lots of wagon rides tonight! He slept off most of the post op grouchies, and has been pretty decent!
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Thankful for the GOOD news; BAD news sounds very complicated. Will keep praying for information and options for the doctors to evaluate, then discernment for you in making decisions. One day at a time.....
ReplyDeletewill lift you up in prayer sweetie. lean on God!
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