His transition meeting was a little underwhelming, you could say. They don't agree with me that he needs to have a nurse in the classroom with him. Funny how even medicaid disagrees. if it was appropriate to send a "trained" person to the house, you better believe they would. But no, they send a nurse. Apparently, the school system says if there's a nurse in the building, that's good enough. Except, when Micah can't breathe, he doesn't have time to call the school nurse, get her down there and get his stuff out and fix the problem. That's a long time without oxygen for a little guy. Adults probably couldn't hold their breath that long! So, their recommendation is that i send my own nurse with him. That's not a big deal NOW, but what about when he's going to school 7 hours a day? And, how is it my responsibility to be sure he gets a free and appropriate public education. Some states say (logically) that they aren't going to pay for hours to be used that way because it's not their responsibility. Not sure what the case is here.
They said they have a trained aide in the room, but the training sounds informal and it would be hard to imagine informal training would ever hold up in court. So, i pointed out that they have a certified person in every classroom to deal with breathing related emergencies (the teacher), why can i not expect that for my own child? One document i read said that the lay person could tip suction (the top of the trach, not down the trach), but to go down the trach (what really helps 90 percent of the time) they should go to the nurse, and the nurse should be the one responsible for putting the trach in. What if the nurse is busy with another emergency she has to deal with? Hmm.
There were a few other things that don't sit well with me, for instance, parents aren't really welcome in the classroom except for class parties. Apparently this is the case in public school now. For a parent who is relying on someone else to keep their child alive, i don't care for the fact i can't drop in and see what's going on. Not cool. Plus, their class limit is 20. For 3 year olds. That's high. She said it isn't always that high, but wow. And that there's no set "3's class". All the 3's are in one class,but there's 4's (and inevitably 5's) in there as well. So, he will be the youngest anyway, in a class with children much older than him.
The big bonus is that the teacher uses sign language to some extent in her class, but not sure how much. Since that's Micah's language, that would be better than nothing.
Apparently, this isn't going to be easy. The school system would pay to have him go to one of three other private preschools in town, but i don't know the reputation of any of them.
We need to move to Warsaw where apparently we wouldn't be having this fight.
*sigh*
Oh, and where is spring? i really could use that right about now. Our little bit of spring was spent in the hospital. Bummer.
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