Quick recap.

First IV stick didn't work, got blood off, but couldn't get it threaded. :( Second worked, but half the bloodwork clotted before it could be sent, and they couldn't draw off the IV. Luckily, the nurse was super nice and said "forget it" to those particular labs.

Since he's had IVIG a few times before they were able to run it at twice the speed of normal, 2 hours instead of 4. That meant we were on the road by 12:30... A very unexpected surprise!


They decided to pull the drain since it's showing no sign of slowing down. They're hoping a compression sleeve (basically) will help slow it down. At this point, it's something to try. If it doesn't work, what we were doing wasn't working either. If nothing else, he should be losing less fluid this way since at worst it'll fill up and stay put.

The rapamycin hasn't done much (although it's only been two weeks). A bit of a scare today... his level of the rapa in his blood was about twice what it should be? Why? No one seems to have ANY idea. Scary stuff. We're taking him off it til Wednesday when we have to repeat bloodwork *whimper* and make sure it's out of his system. It's the same dose it was after his last surgery... Puzzling. His body isn't processing it like he should all of a sudden.


We are headed back in two weeks, barring any major changes (haha).


This week is crazy busy... We could use prayer for that alone. Travis has class T, W, Th... works Friday and half day Saturday. Won't even start listing Micah and I's agenda.

*Deep breath*

And this was the quick recap, right? Here's a pic of the sweetie passed out on benadryl.