Thursday, February 23, 2012

The pace

The pace is picking up around here lately. Can't say i'm ever a fan of that, really. We're adding the following between now and mid-March.
1) Orthotics eval for SMO's (the what for the what? these: SMO's He may or may not need them, it's been up in the air for quite some time, but always got on the back burner due to... Micah being Micah :) i finally decided to get him evaluated so i can stop feeling guilty about it. The goal would be to stabilize his foot so he can do some of the things that he's been behind on from a gross motor perspective. Unfortunately, they're a pain in the toosh, and they have to wear them all the time w/ socks and shoes. And if you've met me, you'll guess socks and shoes aren't a priority around here. Lets hope he doesn't need them.

2) Neurology consult- it's a load of poo, in my opinion. We got a letter from insurance saying he needed a consult. They won't tell me why, but we have to do it. My guess is they're trying to disqualify him from something, i'm afraid to guess what.

3) A new speech therapist- to compliment our current one. Our current will have him once a week for feeding, and the new one will have him 1x week for communication. Can't say i'm thrilled, but whatever. They're trying to push an AAC (see here)device, saying his dexterity isn't good enough for signing and that signing isn't functional for the long term. i've been fighting this fight for about a year now... Blah, blah blah. i can see the merits of both, but i'm not giving up signing anytime soon.

4) A new doc/surgeon: He's going to hopefully enlighten us on the many issues in our little man's mouth. That's part of the Cincy plan for next week

5) The school system. There's not enough time for this one now, maybe ever, LOL.

Micah did well w/ feeding therapy today, he ate an ounce and a half! That's the most he's ate since summer, and maybe ever. Wasn't so cool when he held the last two bites of yogurt in his mouth for an hour or two, then almost threw up everywhere, because... EWW! Overall, since his video swallow study, he's been a different man, all because we found out what he needed.

Phew. i'm tired even typing this out. So, if it seems we've fallen off the face of the earth, it's probably because we have.

1 comment:

  1. Girl, you continue to be heroic.... juggling everything that you are juggling.... being a constant advocate for your little man! Hang in there.... one day at a time!!! :)

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