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This blog is about the journey of our son Micah and his battle with lymphatic malformation (sometimes called cystic hygroma). He is the light of our lives!
About Me
Labels
AAC
baby girl
birthday
blended diet
fetal care center
fun trips
funny
holidays
hospital
Kyleigh
lymphatic malformation
Micahs Medical Miracle Story
Micahs surgical history
milestone
PECS
pneumatosis
rapamycin
school system
sirolimus
SMO
surgery
thankful thursdays
trach
Traveling Awareness Bears
tube feeding
Feedjit
Followers
Blog Archive
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2012
(155)
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May
(24)
- Special needs parenting, alternate 1
- Special needs parenting...
- Fun weekend
- That drain...
- i.e.p. madness
- ER and home, waiting
- 16 hours...
- Hate this disease!
- Return to the docs...
- Genetics, neuro, speech and orthotics, oh my!
- Meet "the bag"
- Trachs, trachs, trachs!
- Global Trach Awareness Week!
- Happy Mother's Day!
- Home
- Sleep, please!
- Leaving?
- Pretty decent day
- Out
- Waiting game.
- Today's To-Do List/What got done 1) Call nursing ...
- The big eval...
- Stressed...
- Healthy baby...
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May
(24)
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