Stressed...

For the last three days, M's needed to be suctioned more frequently and has been feeling warm.  No fever, but these are not things you want to see this close to surgery.  The good news is that it's not changed over the three days, so we're hoping it's allergies/change of weather.  For some reasons a lot of trach children have more trouble w/ weather change.  Either way, it can cut it out!
Other problem is they can't get his reflux medicine.  The compounding agent is on back order, and insurance won't cover the drug in any other formulation.  This has been an ongoing problem from what i hear... and it's so frustrating.  it's sodium bicarbonate! Not rocket science!  We can not be without this for more than a day or two or he will start throwing up, not what we want before surgery.. or ever. Usually once he gets going, it's hard to stop.  So we'll see how much it is and if we can get a couple of days worth to tide us over.  He's not responded well to similar drugs in the past.
Oh, what fun!

Update: We ended up buying a different formulation of the med without insurance. Glad we have insurance, lets say that! We got enough to last us til we get to Cincy.  Couldn't chance having issues at this moment.  So far the potential cold is holding steady. Hope it stays that way!