The discharge coordinator came for a first visit today, and boy was that exciting. She sets up everything Micah needs to come home (medical supplies, doctors visits, nursing care). We're pretty sure we will have a nurse at the house at least a few days a week. That's a pretty strange thought, but I'm sure it'll be nice. We have to find something in the vicinity of our house that does that, so if anyone has any ideas let me know. We got a heads up on a doctor for Micah, someone that Linda knows takes her kids there. We were also offered a private room for Micah until he goes home, which would be nice as well. 6 weeks of being with 5 other babies all day long is getting old. We're not sure when it'll happen, but it seems like it will. The room has its own bathroom, and a chair that pulls out into a bed as well as a desk. We think Travis will get more work done this way which is great! She seemed to think we wouldn't be here too terribly much longer, but it's hard to say. I'm guessing another 3 weeks, but we'll see.
Micah is 6 weeks old today! He's just over 21" and hanging out around 7 # 5 oz. He seems so big to us!
To answer the one measly trach question... How long will he need it? Well, who knows really. Dr. Elluru (ENT) seemed to think it wouldn't be forever, but probably a few years. It depends if Micah can protect his airway, and if they can get malformation under control very well. We hope by the time he's ready for preschool, but neither of us are holding our breath.
We were able to get Micah up today for the first time since Wednesday morning, and we were so excited! We held him for HOURS today... It was great. He had his first trach change, and all went very smoothly.
All in all, a great Monday. How often can you say that? God is good.
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We are still praying for you guys. Natalie and Harley call Micah "Baby Micah" and ask every night that he becomes healthy. Harley is amused that one day, he will be called Mr. Micah and we started out calling him Baby Micah. We are quite a ways off, but if we can do anything let us know.
ReplyDeleteGOD is great!! I'll wait my turn to see 'Mr. Micah' but will be anxious to get to hold him.
ReplyDeleteHe has two fantastic parents!!!
Aunt Janice
God is good all the time and all the time God is good!!! The Stayers will wait their turn in seeing M & M (Miracle Micah as Steve calls him) since we where one of the lucky ones to get in before the flu season hit. We love the photos and hope Travis and you are taking care of yourselves. Heard from your Dad about the lunch out, sounds like your Dad maybe a convert to Cheesecake!
ReplyDeleteLove
Aunt Ellen and Uncle Steve
What a wonderful that was for you all!! And this old great-grandma will wait till everyone else has had a chance to see our big boy. Just knowing that he is home and has all the LOVE AND CARE that he could want is good for me. Keep the faith and know all ours prayers are with you and Travis and our big boy.Give him kisses and hugs from me!!!
ReplyDeleteLOVE
Great-Grandma
Brittany-Heartland Home Health care I believe offers ped. nursing staff. When I was pregnant they came to my home once a week. The staff are awesome and you won't have to worry. They are out of Fort Wayne, located just off State Road 14. I will try to get you a contact number. Take Care and YES GOD IS GOOD. Kim Willson(Stepping Stones)
ReplyDeleteSo glad to hear that Micah, Travis and you had such a good day. Hopefully it won't be too long before you all are home.
ReplyDeleteTake care, and give the baby boy and big kiss from his great-aunt Joni.
OOPS-Critical Care and they moved out by the airport, sorry I forgot. The number is 260-747-0552. Kim Willson
ReplyDeleteGood News! Good News! You'll take that any day! I;m so glad things seem to be looking up - you've both been so patient and deserve a break. I, too, understand that I won't probably be able to see Micah for a while. I;ll just be glad to know the three of you are home and being a real family together. You all deserve so much happiness.
ReplyDeleteI do think you might have to open the shades in one window at your house, and those of us who need a Micah fix can come & see him thru the window!!!! LOL Love , aunt cathy