A pretty good day

Yesterday started out a little rough. The first few times we tried to sit him up he was essentially a little boy weeble. By mid afternoon he was out of bed playing on the (mat on the) floor. I tried to get pics but he wouldn't hold still long enough!

His head looks entirely different. Now the right side of his head is completely flat compared to his left. Basically all that is left is skin on bone. And of course, there's lots of swelling around that, but not in that spot. I'm hoping that as the swelling goes down it'll look more even. Doc things we'll have to inject some fat into that area to make it a little more even someday. I'm not sure Micah has any fat to spare!

We dared to ask what the parameters are for getting out of here... and it kind of depends who you ask. I've got the Nurse practicioner on the floor and the NP from clinic pushing for a hasty exit Friday. (Or at least to the Ronald McDonald House, which we got into, yay!). We'll have to be back at the 2 week mark to get stitches out, but it would be nice to go home for a week or week and a half in the meantime. They want to see his drainage decrease (it iddn't last time for 10 weeks and even that's probably because of the rapamycin!) so we'll probably go home with a drain. No big deal. We have yet to see if he will need another round of IVIG. As active as he was yesterday I might vote to do it overnight (I wonder if that's possible!) so he doesn't have to sit still for 5 hours. We're also supposed to be getting him to eat by mouth... ha! He barely does that anyway!

Well, I was up at 5:30 with Micah and figured I'd stay up til 6am rounds, where are they? First day they were at 6:30, yesterday set my alarm for 6:15 and they were here at 6.... Just can't win with this crazy ENT crowd!