I've been invited to take part in a really fun project, Lymphatic Malformation Awareness Bears! They will be named Luke and Leia (teehee, I didn't pick them, but they're cute!) The bears travel the country, visiting children that have the same condition as the bear. Each bear carries a story of a child with LM, and Luke will carry Micah's story! The bears are outfitted with the medical equipment of the child (trach and g-tube in our case) and carry a passport and journal.
Isn't this a super fun idea? You can read much much more at
https://www.facebook.com/#!/pages/The-Traveling-Awareness-Bears/280749945273598
and if you're not on Facebook
http://www.travelingawarenessbears.org/
They have bears for different conditions, including pediatric stroke, congenital heart defects, chiari malformation, cavernous venous malformations, and esophageal atresia/tracheo-esophageal fistula. Those bears are off on their adventures, and it looks like more are in the works.
It will be a little while til Luke and Leia begin their adventures, but you can request a visit on their website.
Isn't this a super fun idea? You can read much much more at
https://www.facebook.com/#!/pages/The-Traveling-Awareness-Bears/280749945273598
and if you're not on Facebook
http://www.travelingawarenessbears.org/
They have bears for different conditions, including pediatric stroke, congenital heart defects, chiari malformation, cavernous venous malformations, and esophageal atresia/tracheo-esophageal fistula. Those bears are off on their adventures, and it looks like more are in the works.
It will be a little while til Luke and Leia begin their adventures, but you can request a visit on their website.
This is Pat, the Pediatric Stroke Awareness Bear :)
What an awesome idea! So glad to hear that Luke will carry M's story. Can't wait to see a picture of Luke.
ReplyDeleteLove you, Aunt Joni