I've been avoiding the blog mostly lately, because I don't really feel confronting what's going on. The kid isn't swallowing. Okay, maybe he is sometimes, I don't know... But not for the most part. Which means he's not eating or drinking for the most part. He's trying to eat and drink, for the most part it's just staying in his mouth or dripping back out. Speech and occupational therapists want another swallow study. ENT doesn't think he did anything to cause such an impairment. His 2 yr molars are near the surface, which could cause drooling, but something else is going on... The possibilities are nearly endless and I don't know where to start, if we can even convince ENT there's a problem.
We go back down tomorrow. Someone asked how many times we've been down there... I think it'd be interesting how many days we've spent down there in the last 800 or so days... Including the time we were there before he was born, we're at roughly 120. That doesnt even count the clinic visits/follow ups/day hospitals. Maybe someday I can figure out a general number. It's kind of depressing, so maybe I shouldn't.
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Sorry to hear that Micah's having more troubles with his swallowing. Hopefully the ENT will realize that you know what you are talking about and order a swallowing study -- sooner rather than later.
ReplyDeleteLove you all, Aunt Joni