Saturday, October 8, 2011

Something strange.

Update: It's Sunday morning, and no real change. Tried tylenol last night, didn't seem to help. Got a baseline for where he was this morning (worse than yesterday) and am trying tylenol again. There's a fair chance we're going to stop the rapamycin, either just for awhile or maybe entirely. It can cause joint aches, and the hematologist isn't convinced it's doing anything for him. It's hard to say, since he was only on it two weeks, off it ten days, and been on it for about ten days again. Unfortunately, we can't get blood work unless we go to the ER. So, we'll go get it as soon as we get the order in on Monday AM. It can take 2 days to get the rapa level back, although we should be able to get the CBC/IGG back sooner, if they order them.

Micah's got some strange symptoms going on. His right leg seems to be causing him pain and is weak. He's limping/dragging his right foot just a little. The reasons could be endless. Luckily, the hematologist called me today (on a sunny Saturday afternoon) because it could have been an infection, which at this point is a trip to the ER. Looking less like an infection, and more like just about anything else. Hoping to figure it out soon. Could be entirely innocent, but it's been going on for 24 hours now, so who knows.

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