We went over to Children's today to meet with another team of doctors. In this kind of a situation, there's between 2-10 different people per job that you can meet, and this meeting was with a completely different set of doctors than the first time.
For some unknown reason, they found something in Micah's windpipe on the MRI. It's the same MRI they looked at last time, and they didn't see it (or at least mention it). Needless to say this is not good news. They can't tell for sure what it is, but there's a chance it's partially obstructing his airway. That means a normal intubation might not work, and they'd have to do a trach. The trach is a problem because that area of his neck is covered by the cyst- so to get to his windpipe, they'd have to remove the cyst- which there may/may not be time for.
They (of course) brought up EVERY possible variable that could go wrong, and it was incredibly disheartening. The 34-35 week time fame is out the window apparently, in favor for trying to wait as long as 36 weeks. As long as insurance will pay for it, I think they're planning on keeping me here till then. It's still dangerous for Micah and me if I go into labor, so the fact that they're waiting is incredibly frustrating.
The first doctor said that recovery from the surgery itself (to remove the cyst) would be 7-10 days, this doctor said as little as 2-3 weeks, or as much as a few months. We have no idea why things seemed to change so much.
The first doctor said that Micah might have an underdeveloped jaw because of the cyst, the second doctor said that they can already tell he does. The first doctor said there might be nerve damage in his face, but that it would be temporary, the second said it would be permanent.
Needless to say, we didn't want to hear any of this.
That's basically the main idea.
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Oh sweetie, I'm so sorry to hear that the news wasn't good. It can be so frustrating dealing with the medical establishment -- especially in large hospitals. We'll all just keep praying that when the time comes for baby Micah to make his entrance into the world that everything turns out better than expected.
ReplyDeleteYou, Travis, and Micah are in my thoughts and prayers. Love you all, Aunt Joni
May God bring comfort to you during this time of unknown. And praying that the Great Healer touch Micah. Praying for you!
ReplyDeleteSandi
oh, how i wish i could be there right now and give you and travis a big hug. at least you two are together and can comfort each other and talk things thru. i continue to pray for you both and Micah and may God touch all three of you with his healing, loving hands. Know that God is with you no matter how hard things are for you now.
ReplyDeletelove ya, aunt cathy
I'm so sorry that this was such a hard day, hearing about all of the unknowns and questions. Praying that God will bring you comfort during this time of waiting.... that He will sustain you.... and that He will bring you continual reminders that He is Micah's creator and holds ALL of you in the palm of His hand.
ReplyDeleteDeanna Greene
Yeah, a big hug (even for Travis) is in order. Waiting can be so incredibly frustrating but right now, that's the plan. Don't be afraid to ask lots of questions when the drs come around. We're praying for you both and little Micah. judek
ReplyDeleteBritt and Travis-
ReplyDeleteYou two and little Micah are in our prayers- just remember God is there watching over your family- lean on his strength... love you- Tracy and Amy
Britt and Travis, your little boy must be some one very special. He has been thru so much and he isn't even here yet! With parents that are so strong and in touch with whats going on he has to have inherited your strength. Just BELIEVE. I am praying for a happy day for all of you. Monica
ReplyDeleteI have been thinking of you and Travis. I enjoy reading and keeping up with Micah and you. Take care of yourself.
ReplyDeleteLove
Grandma Barb